Giving and receiving

It is when people are at their lowest point that friends, family and even strangers show true colors. Our family has had the privilege of getting to know and meet so many amazing people and families throughout our journey so far. Some of them close and others half way around the world. The one thing that has amazed me the most are how big some people's hearts really are! Until you have to worry about things like handicapped equipment, formula, medical supplies, special needs cars seats, handicapped strollers, etc. you have no idea the hoops people go through to get the things they need for their child/ children. It frustrates me to hear people talk about their insurance companies do not find it " medically necessary". If a child needs something, how is it " not necessary"? Jason and I have been so extremely blessed. For the most part insurance covers what Peyton needs. And for the few things it hasn't they have been graciously given to us by other families! A special needs car seat that will fit him for some time to come was the most recent thing. Peyton went into the hospital in a regular booster chair like any other 5 year old. But coming home, things were much different. We originally bought a regular Graco 5 point harness seat that worked ok, but over the last few months doesnt seem to work for longer distances...even the hour it takes to go to U of I. Our insurance doesn't pay for special needs car seats. They don't find them " medically necessary". So a family no longer needed the one they had and the Hunters Hope Foundation payed to ship it to us. AMAZING. It looks great and Peyton loves it. He is so comfy in it. It made me tear up. Those cost over $700 and someone gave it to us. WOW. We have also been given a handicapped stroller that tilts for Peyton. He currently is unable to use his power chair. Also we were given a swing for Peyton to use. It fit perfectly on the swingset and it allows him to do something he has always loved! It's amazing acts of kindness such as these that make things a little easier! On another note. Peyton received something in the mail the other day. A signed football from Hall of Fame QB Jim Kelly from the buffalo bills!!!! Jim and his Wife Jill are the founders of The Hunters Hope Foundation. Their son Hunter had Krabbe Leukodystrophy. It is an amazing organization so if you have the time check it out www.huntershope.org take a look around. Check out their hunters wall of fame :) Peyton is on their! So our plan is to give Peyton's medical equipment that he no longer needs or grows out of to other families In need. In hope to make their journey maybe just a little easier! With Hope and Love Jess